What is this?

What is this? I don't really know, other then a continuation of my updates and writings that I was sharing previously on Caringbridge of this journey through cancer and now widowhood and single parenting.

Maybe it won't end up being anything at all, or maybe it will be a glimpse into my heart, my life, my current situation, my testimony.

Whatever it becomes, I am touched that you are interested.

Monday, August 4, 2014

Still Waiting

I apologize for how quick and to the point my updates have to be.  It's quite difficult to get a moment to update with all that is going on.  


Here is where we stand:

When Brandon was in the hospital last week and early this week they determined that he has a blood clot at the site of his port.  This was likely caused by the high levels of proteins his body is leaking due to his kidneys not functioning properly, which is likely caused by the Avastin treatments he has been receiving since 2011.

A kidney biopsy revealed some damage to the kidneys but ultimately was inconclusive.  They have diagnosed him with Membranous Nephropathy.http://www.mayoclinic.org/diseases-conditions/membranous-nephropathy/basics/definition/CON-20026050 

From what they are telling us, there is nothing to do but wait it out for the kidneys to start recovering and treat the symptoms as well as treat the blood clot.  He will be on anticoagulants for at least 3-6 months to treat the clot.

He was released from the hospital yesterday early afternoon, but shortly after getting home he declined.  At 10:30pm after severe abdominal pain and vomiting we called an ambulance to take him back to the ER.  He was given an x-ray to check for a bowel perforation or obstruction, and thank God it was clear.  So they gave him pain and nausea meds and sent him home, despite all of our reservations of him coming home.

We remained optimistic that we just needed to stay on top of the pain and nausea with meds and wait this thing out.  But since this morning the vomiting has increased and we can no longer keep any water, food or meds in him and David took him back to the ER.

We are working with his Oncologist office and the Internal Medicine/Oncology unit at the hospital to try to get him admitted again, since last night the ER thought he was fine to come home.

We are all frustrated with this merry-go-round and declining health and seemingly nothing being able to be done to help.  

Our God is bigger then this.  He has provided in so many ways.  We are all trying to focus on the blessings we have experienced in the midst of this trial.  The support of family and friends has been amazing.  The meals, gift cards, care packages, helping hands and prayers have been such a blessing to us all.  We are amazed at everyone that has lifted us up in continual prayer and sent heartfelt messages to us all.

On Saturday I received a knock at the door only to find two people, a camera and a large check waiting to congratulate us that we had been nominated and selected to receive one month's mortgage payment made for us by an amazing realty company in Denver called TRELORA and their program Green Pig Denver.  Check out the short video here:  https://www.youtube.com/watch?v=Uyh_zXPZvUc&feature=youtu.be

And their facebook page here: https://www.facebook.com/GreenPigDenver 

We are so thankful for the anonymous person(s) who thought to nominate us!  Having that payment made for this month will help us so much with the costs of all this.  We are incredibly thankful and humbled.

Prayers:

-Pray for strength and endurance for Brandon's weary body and spirit.
-Pray for wisdom for the doctors treating him.  We are praying there is something that can be done besides 'wait and see', which is not going well.
-Pray for God to provide and direct as needed as we explore further treatment options at other specialized Cancer Facilities.  Unfortunately none of these are here in Colorado, so we really need God to provide a way if it is His Will.
-Pray for the strength of the caretakers, David, Roger, Bonnie and myself.  Feeling helpless and watching someone you love so dearly suffer like this is incredibly difficult.  
-Pray that God's is Glorified in this battle we are facing.  He promises that all things work for His good.  Pray that we can surrender to Him and 'Praise Him in this storm'.

*Note:  Donations made on this site on the 'Donate Today' button go to support CaringBridge, since it is a free site for people to utilize.  Thank you so much to those who have made tributes in Brandon's name to support the site.  

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