Since being released from the hospital on Wed Brandon has continued to battle whatever is going on with his body.
Currently we are doing our best to keep the swelling under control. Thankfully it seems that so far his lungs still remain fluid free. Right now it seems contained to his legs, ankles, lower back, abdomen and left arm. He still struggles with a cough when he gets up and moving a little, I believe it's his lungs continuing to re-inflate from all the fluid that compressed them last week.
Otherwise we are doing our best to manage the other symptoms lingering from last week.
Monday's treatment is postponed as we try to figure out what is going on with his body. We have had a nagging suspicion that there is an underlying kidney issue going on for some time now, and that treatment just pushed it over the edge. The oncologist is doing what they can to get Brandon seen by a nephrologist hopefully Monday or Tuesday. Please join us in LOTS of prayer that we can be seen ASAP to get the necessary tests done to get Brandon feeling better. At this point he is unable to to really get out of bed, and we are just managing symptoms waiting for a real answer with the days just passing by. It's been mentally, physically and spiritually exhausting for all of us and we just want Brandon to get some relief. It's been almost 2 weeks of this and we are all in need of a respite.
So many people have asked how to help and right now I guess the best way is to help us keep ourselves fed. I want so bad to visit with friends, get to introduce Aria to everyone, and give those around us an opportunity to help, but it has just been difficult to try to schedule visits. Often Brandon is not physically up for company, and I am busy nursing and taking care of things around Aria's schedule, and if friends are being kind enough to bring a meal by I want to also offer a visit with us and the baby, but it just has not been possible to do.
So, I am going to put some things on the care 'planner' finally, despite how difficult it is for me to do. If you are near and you choose to drop a meal by at any point I hope we are able to invite you in for a short visit, but unfortunately there may be days that we just can't. Thank you for understanding. If you are far and still would like to help somehow gift cards to either Whole Foods or nearby restaurants for take-out/delivery could be very useful.
I will write another post later today or tomorrow with more specifics for the planner.
We thank you from the bottom of our hearts for your continuous prayers and desire to help!
-God has provided the strength we need to get through this. Some days we are thriving and some days we are merely surviving, but none the less we have made it through each day, and we will continue to praise Him for being faithful.
-To be seen by a nephrologist ASAP and for wisdom for the doctors to figure out what is off
-For strength for Brandon's body to overcome this.